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Matt are you DXed with MS? You mentioned that you don't have lesions. Have you ever heard of spinal fluid showing up as lesions? In that case wouldn't everyone have them?

I know about the wait thin ...

Matt, they did all the MS mimiker tests 3 times all negative each time.
But they won't look into if it could be something else. They just say can't say, don't know, could be, don't think so, that ki ...

I'm sure doctors talk to one another--and to lawyers too for that matter. They might belong to the same country club, go to the same cocktail parties, go on ski trips together, etc.

They're as capa ...

I remember phases where most of my stress was caused by doctors too, Pat.

In all honesty, a lot of your symptoms don't sound all that much like MS to me. MS can present in all sorts of different w ...

Joy,

So I finally taught my self how to do this quoteing just a portion of a post. I always wondered how people did that.

Would it help any if your PCP referred you to another neurologist in ...

Try calling your HMO and ask to have a "care coordinator" or "case manager" assigned to you.
I already called to ask about this, they said they don't do this.

The HMO can't refuse to give your neu ...

Agate, ( I used to play with marbles like that when I was a kid, lol). When I go to the doctors I have a pre-printed sheet of allergies, and write see attached in that section, it's long.

I have a ...

I have my pcp giving me LDN and provigial. I can not see a neuro, my insurance won't let me anymore, they suggested a phycitrist. So here is a long story but doesn't cover the half of it.

Pat’s Lim ...

Cherie is one of the most caring and giving individuals that I have come to know. I have seen her fighting her way back from some very bad situations and in the midst of doing so she is always looking ...

I was so flustrated one day when the sec. at the neuro asked my phone number, I've had it for 30 years, I had no clue, I yelled at her and said I don't know what it is you have it in my file, look it ...

Signs
Armagedon
right stuff
the full monty
dances with wolves
pirates of the carribean

I can't think of all of them now.
Conquestador, no one has heard of this one, I saw it in the 70's there ...

I agree on how things can be taken on the "boards". I've had this problem on a couple too. When you can't hear the tone or inflection, you lose so much. Sometimes people don't get the humor either.
...

Joy, I have no DX, I have taken matters into my own hands, with the help of my PCP. They only thing a neuro has given me is provigal and trazadone for sleep. Well a neuro tried to put me on phenabarba ...

I have been on it for 7 months now, with some pretty darn good results.

When I wake up in the morning I no longer dribble in my drawers. I still have occational days where I have this problem durin ...

marshmellow, I am adopting a one eyed cat tomorrow, it is a 7 week old kitten that someone found along side the road. I just couldn't resist, poor kitty. I have 3 other cats also, oh no, am I becoming ...

Agate, my husbands records were in the legal department at the hospital before I even contacted a attorney. It took him 7 months to get them released, and still we don't have them all.

I am denied ...

I had suggested filtering my blood to doctors beginning in 1991. I had no clue as to what it was called, I just came up with this idea without reading anything.

I have always been fastenated by blo ...

My last neuro ran these tests and told me I had chronic active Epstein Barr. My hemo dr disagrees with that, but I can't get anyone to run the full panel and get this settled once and for all, they sa ...

I was doing great for about a month and a half, but since my trip, not so good. But much better than a year ago, and pre-LDN. Now just what is wrong with me, and why do I have all these lesions and sy ...

Thanks for the laugh, I juat love animal videos.
Pat

Well we found out it isn't 4 weeks, this person didn't know much about kittens I guess. Anyway she turned it into a rescue center, Tessa, (my youngest almost 22) called the place and it is about 7 wee ...

Jobs are hard to find, to put a roof over your head, and food in your mouth.
The promise of an education, to get a job after.
Because their parents want them out of the house, and they have no way ...

Agate, this kitty was found on the side of a road, it doesn't have a mother to take care of it, and poor thing only has one eye, they don't know what happened to it. Her husband is allergic to cats. I ...

I am debating on taking in another kitty, 4 weeks old, someone found it, it has an eye missing. If it's a boy I could put a patch over it's eye and call it Captian Jack Sparrow. yum, yum.
Pat

Here is a picture of my crew Mannie, (Maine Coon cat) Charlie, (yellow tabby) and Ebony, (black cat).
http://i34.photobucket.com/albums/d144/pals1107/IMG_0074.jpg

And here is Sal my Quaker parrot. ...

I voted no, because knowing what has gone on and is going on might possibly change things for the better. Maybe someone out there could do something to stop it.

I was treated unfairly at MSW, it wa ...

It would be funny if it wasn't true.
Pat

For everyone:

What is it that is attractive about being in the military, for the young people?

Why is it that so many young people think this is a good thing? There must be some sort of "market ...

One of my biggest pet peves is doctors! They don't listen, and when what you have been saying all along has been proved they don't want you as a patient. They don't like patients that know too much, a ...

For the sake of an argument let's just say, everything, if not most, of what Cherie is listing about MSW is true.
Would you still have that "just walk away" mentality?

Imagine yourself in the begi ...

Wow I must still be on vacation, I never scrolled down to see this catigory.

Cherie, yes it was me that was repumanded for speaking about a party I went to in Hell Michigan, also I was warned about ...

Agate, most of it was "on stage", but quickly deleted by "them" so as to make me look even more, strange or just plain arguementitive. You take out posts or lines and a person can look like they are n ...

Agate, yeah it wasn't pretty, it all started on an innocent post about a Michigan get together, why on earth they felt the need to change my words and delete my posts is beyond me. There was absolutly ...

Ok I'm going to out myself. I don't like the fact that I am using a different name, but I did so because of the fact that there were so many from MS H*ll, I mean MSWorld. I was followed and attacted, ...

Agate did you get my PM? I was having trouble with it.
O&O

Wow Agate I figured you to be in your late 30's or early 40's. Your type doesn't show your age.

Question have you ever tried LDN? I have seen some remarkable results for myself and heard of many ot ...

Salt cravings - not really
brown patches - yes
low blood pressure - yes
no appitite - yes
O&O

Agate, where's your birthday?

Agate, all the energy it would take for this acomplishment I guess, makes me think you are younger. I will be 54 in November.
O&O

Sweety, love the cat, that is what I would like to do to doctors! Well we all can have fanticys.
O&O

Mom 5 welcome, I also have 5 kids, and 7 grand kids, so far.
I only have two grown ones at home yet, fortunatly we all have our own PC's.
O&O

Congrats, I got side tracked by life, I went from 1 kid to 5 in 2 years time. But I only gave birth to 3 of them.
Just never got back into it. I was going into either hematology or immunology, but th ...

Welcome girl, from one newbe to another.
O&O

Animals are difficult. That's why I'm an orchid grower. But, if I got an animal, I think it would be a parrot. Aren't they pretty easy?

Matt, parrots aren't easy, they are very demanding of atte ...

Thanks for all the welcoms.

odatwithms, aren't we all the One & Only? We are unique, each of us.

O&O

I would love to see the answers to those questions.
You said it very well Lady Express!

If information is all you seek then I suggest you google the information you need.

I was always under the ...

Matt, I did have a spinal MRI, but one neuro said it was useless, it was not done to protacal. Full MRI brain c spine and thorasic with and with out contrast, with dressing and undressing time, and in ...

Matt, I must admit I just skimmed over you link, way too much for me to process right now. I have that problem, when I see a big block of information my brain shuts down.

What symptoms have I had? ...

My councilor is going to talk to my primary and set him straight about my mental health. All we talk of is how to deal with these so called doctors. She wants me to change my insurance, but I can't do ...

I am hesitant about a shrink, I have a legal issue going on that involves a doctor, (same insurance system). I think it is a tatic to discredit me.

But if need be I have PLENTY of people that could ...

Agate, phycitrist, they think it is in my head, but maybe it is the lesions, numberous.

THank you all for the welcome also, it's nice to have a place to go that is friendly, and promotes learning.

I'm not a big fan of the wait and see, I've been waiting too long, but only a year and a ...

Mr. Soul said:
(can I say that?)

Regarding censorship, the banning doesn't really personally insult me, it's when ONE of those boards has the AUDACITY to modify my posts, putting words in my mouth ...

I went in the direction of MS because the ER docs said they thought this was what I had, I had never considered it in my 15 year search for what was wrong. Then my first neuro said MS but retracted it ...

Thanks Matt, some places don't care for someone who has no difinative answers.

All I have is Chronic fatuige, demyelinating brain disease, Chronic Epstein Barr, psoriasis, IBS, strange blood, visio ...

And here for the enjoyment of getting to know you all ............Ta Da.

Is that the intro you were speaking of Dave? Just kidding.

Well I am one of those dreaded Limbo landers, so put up with m ...

November 7th, 1952 O&O/Pat

I had heard that allot of people had access problems, but fortunatly I was not one of them.
O&O

Good topic, I like the idea of seeing how things go as to rules. Small boards can have their advantages, more personalble and friendly.

I too spent a very short stint at MSW, but did not find it to ...

Tango, I hope you have good results with it, I began LDN in December. So far so good, and wishing you the same.
O&O

Hello all, as the topic shows I am new here. I just wanted to announce myself as a new member, and I am looking forward to getting to know all of you.
O&O