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  Topic: RIP Mr Soul/Mr Natural/Dave
agate

Replies: 4
Views: 5263

PostForum: FORUM ANNOUNCEMENTS   Posted: Thu May 22, 2014 3:31 pm   Subject: I just saw this post, Matt
I'm sorry I haven't been back here often enough and had no idea anyone might be posting since the changeover to a different board in November.

Good to hear from you, Matt--and you're already regist ...
  Topic: NEW BOARD FOR MS SPEAKS
agate

Replies: 0
Views: 2900

PostForum: FORUM ANNOUNCEMENTS   Posted: Tue Nov 26, 2013 11:55 pm   Subject: NEW BOARD FOR MS SPEAKS
This board has moved although the old one will keep working. I will be posting on the new board from now on.

You can get to it here:

http://msspeaks.createaforum.com

This will be a more up-t ...
  Topic: Omega-3 supplements in question
agate

Replies: 0
Views: 3313

PostForum: GENERAL   Posted: Sun Nov 24, 2013 5:19 pm   Subject: Omega-3 supplements in question
From the Berkeley Wellness Letter, November 19, 2013:

About 10 percent of Americans take fish oil (omega-3) capsules, which are now the third most widely used dietary supplement after multivitamins ...
  Topic: NMSS teleconference on eating well 12/5
agate

Replies: 0
Views: 3310

PostForum: MS WEBCASTS, TELECONFERENCES, SEMINARS   Posted: Fri Nov 22, 2013 6:55 pm   Subject: NMSS teleconference on eating well 12/5
From the National MS Society:


Eating Well, Eating Easy

Teleconference

Thursday, December 5th, 2013
6:30 - 7:30 p.m. PT / 7:30 - 8:30 p.m. MT




The teleconference will help you: ...
  Topic: MAURICE by E. M. Forster
agate

Replies: 0
Views: 3364

PostForum: BOOKS   Posted: Thu Nov 21, 2013 10:22 am   Subject: MAURICE by E. M. Forster
Forster's novel about homosexuality (published in 1971) came to light only after his death. Originally written in 1913-14, it was revised twice by the author (1932 and 1960) but apparently he thought ...
  Topic: Rethinking the way UTIs are diagnosed
agate

Replies: 0
Views: 3271

PostForum: THE PRACTICAL SIDE OF BEING MULTIPLY SCLEROSED   Posted: Tue Nov 19, 2013 8:53 pm   Subject: Rethinking the way UTIs are diagnosed
From Medical News Today, November 18, 2013:

Urine culture study in NEJM suggests updated approach to diagnosing UTIS


Urine culture study in NEJM suggests updated approach to diagnosing UTIs
...
  Topic: Slow pace of McDonald's transition to healthier fare
agate

Replies: 0
Views: 3079

PostForum: THE PRACTICAL SIDE OF BEING MULTIPLY SCLEROSED   Posted: Sun Nov 17, 2013 7:44 pm   Subject: Slow pace of McDonald's transition to healthier fare
From The agonizingly-slow pace of a fast food giant


The appeal of fast food chains has not been their food (mostly fat, salty, sugary, empty-calorie blah), but their speed. Order, pay, and – Bam! ...
  Topic: Testosterone halts gray matter atrophy in MS
agate

Replies: 0
Views: 3379

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Sat Nov 16, 2013 11:56 pm   Subject: Testosterone halts gray matter atrophy in MS
From MedPage Today, November 15, 2013:

Testosterone Halts Gray Matter Atrophy in MS

By Cole Petrochko, Staff Writer, MedPage Today

SAN DIEGO -- Testosterone treatment was associated with reve ...
  Topic: FDA panel gives mixed message on Lemtrada
agate

Replies: 0
Views: 3127

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Fri Nov 15, 2013 6:59 pm   Subject: FDA panel gives mixed message on Lemtrada
From MedPage Today, November 13, 2013:

FDA Panel Gives Mixed Message on Lemtrada


By Joyce Frieden, News Editor, MedPage Today

SILVER SPRING, Md. -- An FDA advisory committee voted overwhelm ...
  Topic: New MS therapy on horizon?
agate

Replies: 0
Views: 2846

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Thu Nov 14, 2013 7:12 pm   Subject: New MS therapy on horizon?
From MedPage Today, November 12, 2013:

New Therapy for MS on Horizon?


By John Gever, Deputy Managing Editor, MedPage Today

Note that this study was published as an abstract and presented at ...
  Topic: (Abst.) MS International Federation described
agate

Replies: 0
Views: 2965

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Wed Nov 13, 2013 7:23 pm   Subject: (Abst.) MS International Federation described
From PubMed, November 13, 2013:

Neurology. 2013 Nov 12;81(20):1793-5.

Multiple Sclerosis International Federation: Stimulating international cooperation in research

Thompson AJ, Chandraratna ...
  Topic: FDA: Lemtrada has "serious safety issues"
agate

Replies: 0
Views: 2832

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Mon Nov 11, 2013 7:08 pm   Subject: FDA: Lemtrada has "serious safety issues"
From MedPage Today, November 9, 2013:

FDA Reviewers Slam Lemtrada Efficacy, Safety


By John Gever, Deputy Managing Editor, MedPage Today

SILVER SPRING, Md. -- FDA staff reviewing the marketi ...
  Topic: Concealed carry guns for teachers?
agate

Replies: 0
Views: 2963

PostForum: FIGHT CLUB - BRING IT ON!   Posted: Mon Nov 11, 2013 12:46 pm   Subject: Concealed carry guns for teachers?
Teachers armed with guns in the classroom? Many teachers are very opposed to this idea.

There is a good (in my opinion) blogpost about the issue [url=http://newtrajectory.blogspot.com/2013/10/more- ...
  Topic: Study of MS cognitive fatigue
agate

Replies: 0
Views: 2738

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Sun Nov 10, 2013 9:47 pm   Subject: Study of MS cognitive fatigue
From Medical News Today, November 6, 2013:

Neuroimaging study sheds light on mechanisms of cognitive fatigue in multiple sclerosis


A new study by Kessler Foundation scientists sheds light on t ...
  Topic: ECTRIMS 2013 - MSAA summary
agate

Replies: 0
Views: 3133

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Sat Nov 09, 2013 9:35 pm   Subject: ECTRIMS 2013 - MSAA summary
From the MSAA newsletter, November 6, 2013:

Highlights from the ECTRIMS 29th Congress International Meeting (2013)


Written by Margaret M. McCormick, RN, BSN, MSCN
Reviewed by Jack Burks, MD, ...
  Topic: NEJM article on caring for Medicaid patients
agate

Replies: 0
Views: 3135

PostForum: THE NEWS   Posted: Fri Nov 08, 2013 12:45 pm   Subject: NEJM article on caring for Medicaid patients
As a Medicaid patient, I've been grousing for years about the unequal access to medical care that is available to those on Medicaid. Many doctors (and dentists) simply refuse to accept people on Medic ...
  Topic: (Abst.) Emerging injectable MS therapies (Lancet)
agate

Replies: 0
Views: 2796

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Thu Nov 07, 2013 6:42 pm   Subject: (Abst.) Emerging injectable MS therapies (Lancet)
From NTK Watch, November 5, 2013:

Lancet Neurol. 2013 Nov;12(11):1115-26. doi: 10.1016/S1474-4422(13)70192-3.

Emerging injectable therapies for multiple sclerosis

Oh J, Calabresi PA.

Depa ...
  Topic: A bit of pruning here
agate

Replies: 2
Views: 2629

PostForum: FORUM ANNOUNCEMENTS   Posted: Tue Nov 05, 2013 9:07 am   Subject: A bit of pruning here
I'm now on page 20 (August 2008) and moving along. If anyone is around who contributed posts to threads, please be assured that I'm deleting only threads that have no comments by other people in them ...
  Topic: Watching calories can be tricky
agate

Replies: 0
Views: 2708

PostForum: THE PRACTICAL SIDE OF BEING MULTIPLY SCLEROSED   Posted: Mon Nov 04, 2013 7:25 pm   Subject: Watching calories can be tricky
If you're watching your calorie intake, those nutrition information panels on food labels can be very tricky. Here's an example from NutritionAction.com:

Pesto Change-O

Posted By Jayne Hurley On ...
  Topic: Food
agate

Replies: 32
Views: 24098

PostForum: THE PRACTICAL SIDE OF BEING MULTIPLY SCLEROSED   Posted: Mon Nov 04, 2013 7:23 pm   Subject: Whole Foods Pesto--70 calories per tablespoon
If you're watching your calorie intake, those nutrition information panels on food labels can be very tricky. Here's an example from NutritionAction.com:

Pesto Change-O

Posted By Jayne Hurley On ...
  Topic: Food
agate

Replies: 32
Views: 24098

PostForum: THE PRACTICAL SIDE OF BEING MULTIPLY SCLEROSED   Posted: Mon Nov 04, 2013 7:23 pm   Subject: Whole Foods Pesto--70 calories per tablespoon
If you're watching your calorie intake, those nutrition information panels on food labels can be very tricky. Here's an example from NutritionAction.com:

Pesto Change-O

Posted By Jayne Hurley On ...
  Topic: A bit of pruning here
agate

Replies: 2
Views: 2629

PostForum: FORUM ANNOUNCEMENTS   Posted: Mon Nov 04, 2013 8:47 am   Subject: A bit of pruning here
Progress update: So far I've gone through the first 14 pages of the Research section, going back to December 2009--and deleted what amounts to several pages of threads.

I've gone through one of th ...
  Topic: Nanoparticles stop MS in mice
agate

Replies: 1
Views: 2466

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Sun Nov 03, 2013 2:12 pm   Subject: "Big MS breakthrough"
From Northwestern University News, June 2013:

BIG MULTIPLE SCLEROSIS BREAKTHROUGH

by Marla Paul

CHICAGO --- A phase 1 clinical trial for the first treatment to reset the immune system of mul ...
  Topic: A deadly mix: kids & guns in the house (MedPage Today)
agate

Replies: 0
Views: 2931

PostForum: GENERAL   Posted: Sat Nov 02, 2013 3:39 pm   Subject: A deadly mix: kids & guns in the house (MedPage Today)
From MedPage Today, November 2, 2013:

A Deadly Mix: Kids and Guns in the House


By Charles Bankhead, Staff Writer, MedPage Today
Reviewed by Zalman S. Agus, MD; Emeritus Professor, Perelman Sc ...
  Topic: Multivitamins
agate

Replies: 0
Views: 2755

PostForum: THE PRACTICAL SIDE OF BEING MULTIPLY SCLEROSED   Posted: Fri Nov 01, 2013 6:45 pm   Subject: Multivitamins
From the Nutrition Action HealthLetter, October 29, 2013:

Do Multivitamins Lead to a Shorter Life?

An answer from the largest, longest trial of multis

David Schardt

When an Op Ed in The N ...
  Topic: MS patients & the Affordable Care Act (ACA)
agate

Replies: 1
Views: 2347

PostForum: THE PRACTICAL SIDE OF BEING MULTIPLY SCLEROSED   Posted: Thu Oct 31, 2013 6:23 pm   Subject: MS Foundation recommendations
From the MS Foundation MSFYi Internet Newsletter, October 31, 2013:

Though many provisions of the Affordable Care Act (ACA) are under way, healthcare reform continues to evolve as rules are clarifi ...
  Topic: Documentary about MS & Nordic skiing needs support
agate

Replies: 0
Views: 3202

PostForum: MOVIES   Posted: Thu Oct 31, 2013 6:16 pm   Subject: Documentary about MS & Nordic skiing needs support
From the MS Foundation MSFYi Internet Newsletter, October 31, 2013:

Documentary about MS and Nordic Skiing Needs Supporters

A Norwegian-American film director and a professor of neurology who ...
  Topic: WHEN I WALK - about MS
agate

Replies: 0
Views: 3044

PostForum: MOVIES   Posted: Tue Oct 29, 2013 6:16 pm   Subject: WHEN I WALK - about MS
I haven't seen this movie yet but When I Walk is a documentary about a young man with MS.

A review of it is available [url=http://www.hollywoodreporter.com/review/i-walk-sundance-review-414676]here ...
  Topic: CARRIED AWAY by Alice Munro, 2013 Nobel Prize winner
agate

Replies: 0
Views: 3091

PostForum: BOOKS   Posted: Mon Oct 28, 2013 6:19 pm   Subject: CARRIED AWAY by Alice Munro, 2013 Nobel Prize winner
CARRIED AWAY: A SELECTION OF STORIES (2006)


While reading this selection of stories by Alice Munro, whose fiction I have been reading for many years, I was happy to learn that she received the No ...
  Topic: MSAA live Webinar on Medicare changes
agate

Replies: 1
Views: 2875

PostForum: MS WEBCASTS, TELECONFERENCES, SEMINARS   Posted: Sun Oct 27, 2013 5:32 pm   Subject: Webinar November 19
Another one is being scheduled. This is from an e-mail sent out by the MSAA:

THE NEW INSURANCE MARKETPLACE AND MS - Live Webinar

Date: November 19th, 2013
Time: 8:00 - 9:00 PM ET

The Afford ...
  Topic: Peanut butter alternatives
agate

Replies: 0
Views: 2699

PostForum: THE PRACTICAL SIDE OF BEING MULTIPLY SCLEROSED   Posted: Sat Oct 26, 2013 10:18 pm   Subject: Peanut butter alternatives
From Nutrition Action, October 26, 2013:

Nut, Seed, and Soy
Posted By Jayne Hurley

Is peanut butter passé? Not quite, but it’s sure got company.

Almond butter. It has less saturated fat and ...
  Topic: A bit of pruning here
agate

Replies: 2
Views: 2629

PostForum: FORUM ANNOUNCEMENTS   Posted: Sat Oct 26, 2013 4:33 pm   Subject: A bit of pruning here
The administration here (which I am) will be going through the threads in the Research section and culling out ones that seem to be of questionable value.

Those abstracts being deleted will be ones ...
  Topic: MS TREATMENTS: TYSABRI-RELATED TOPICS
agate

Replies: 60
Views: 45306

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Fri Oct 25, 2013 1:45 pm   Subject: (Abst.) Tysabri-induced PML [one case]
Sometimes people say they wish they knew how the Tysabri-related PML cases are doing. The data isn't readily available but here is a brief report on one case.

From PubMed, October 25, 2013:

Clin ...
  Topic: Red palm oil not needed
agate

Replies: 0
Views: 2751

PostForum: THE PRACTICAL SIDE OF BEING MULTIPLY SCLEROSED   Posted: Fri Oct 25, 2013 1:29 pm   Subject: Red palm oil not needed
From the Berkeley Wellness Alerts, October 10, 2013:

(Ask the Experts)

Q: Is red palm oil as “miraculous” as Dr. Oz says?

A:Hardly. Like so many of Dr. Oz’s endorsements, this one is support ...
  Topic: MS TREATMENTS: TECFIDERA (dimethyl fumarate)
agate

Replies: 8
Views: 16426

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Thu Oct 24, 2013 8:41 pm   Subject: Tecfidera: Sidestepping the side effects
From the Rocky Mountain MS Center eMS News, October 24, 2013:

Tecfidera: Sidestepping the Side Effects

Physicians prescribe, and we take, medications because they have a desired effect and produ ...
  Topic: AKEELAH AND THE BEE (2006)
agate

Replies: 0
Views: 2997

PostForum: MOVIES   Posted: Wed Oct 23, 2013 6:06 pm   Subject: AKEELAH AND THE BEE (2006)
This movie is apt to be a tear-jerker but not because of its unhappy moments. The happy moments are the ones that bring on the tears.

It’s a story about–of all things–a spelling bee. The National S ...
  Topic: Short award-winning film about woman w/MS
agate

Replies: 0
Views: 3072

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Tue Oct 22, 2013 5:28 pm   Subject: Short award-winning film about woman w/MS
An award-winning short documentary called "Flo: Portrait of a Street Photographer" focuses on a woman disabled by MS who lives in New York City photographing the world around her. It can be seen [url= ...
  Topic: PPMS explained (MSAA/NMSS)
agate

Replies: 0
Views: 2970

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Mon Oct 21, 2013 11:01 am   Subject: PPMS explained (MSAA/NMSS)
This is one of the best explanations of PPMS that I've seen.

Primary-Progressive Multiple Sclerosis--
The Less Talked-About Form of MS

Historically, primary-progressive multiple sclerosis (PPMS ...
  Topic: (ECTRIMS) 3 major advances in MS--video
agate

Replies: 0
Views: 2605

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Mon Oct 21, 2013 10:54 am   Subject: (ECTRIMS) 3 major advances in MS--video
This video shows Andrew N. Wilner, MD, Fred D. Lublin, MD, and Robert J. Fox, MD, in a discussion of three topics they felt deserved highlighting from the recent ECTRIMS conference--RIS (radiologicall ...
  Topic: (ECTRIMS) Progressive MS still enigmatic
agate

Replies: 0
Views: 2550

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Sun Oct 20, 2013 6:13 pm   Subject: (ECTRIMS) Progressive MS still enigmatic
From MedPage Today, October 10, 2013:

Striking a Nerve: Progressive MS Still Enigmatic


By John Gever, Deputy Managing Editor, MedPage Today

With the recent approvals of several oral drugs t ...
  Topic: Cell-culture transplant possible for neuro disorders
agate

Replies: 0
Views: 2623

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Sun Oct 20, 2013 8:48 am   Subject: Cell-culture transplant possible for neuro disorders
From Medical News Today, October 6, 2013:

Cell-culture transplant possible for neurological disorders

Scientists say that small brain biopsies could be used to grow large numbers of cells, which ...
  Topic: (Newsweek) Rare bacterium responsible for MS?
agate

Replies: 0
Views: 2856

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Sat Oct 19, 2013 8:24 am   Subject: (Newsweek) Rare bacterium responsible for MS?
From Newsweek, October 17, 2013:


Multiple Sclerosis Research Points a Finger at Bacteria

By Victoria Bekiempis

A rare, toxin-spewing bacterium might spur multiple sclerosis, new research s ...
  Topic: SWEET LAND (2005)
agate

Replies: 0
Views: 2674

PostForum: MOVIES   Posted: Fri Oct 18, 2013 9:23 pm   Subject: SWEET LAND (2005)
Sweet Land is a very different and refreshing movie to watch in this time when everything has to be explicit. Much is left to our imaginations here, and the result is an effective and touching story a ...
  Topic: MS TREATMENTS: AUBAGIO/TERIFLUNOMIDE
agate

Replies: 7
Views: 7068

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Wed Oct 16, 2013 11:30 am   Subject: (Abst.) Aubagio vs. subq IFN beta-1a in RRMS...
From PubMed, October 16, 2013:

Mult Scler. 2013 Oct 14.

Teriflunomide versus subcutaneous interferon beta-1a in patients with relapsing multiple sclerosis: a randomised, controlled phase 3 tria ...
  Topic: MS TREATMENTS: TYSABRI-RELATED TOPICS
agate

Replies: 60
Views: 45306

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Wed Oct 16, 2013 11:24 am   Subject: (Abst.) Brainstem PML lesion mimicking MS plaque...
From PubMed, October 16, 2013:

Neurology. 2013 Oct 15;81(16):1470-1471.

Brainstem PML lesion mimicking MS plaque in a natalizumab-treated MS patient

Tortorella C, Direnzo V, D'Onghia M, Troja ...
  Topic: Emerging injectable therapies for MS (summary--Lancet)
agate

Replies: 0
Views: 2772

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Tue Oct 15, 2013 12:19 pm   Subject: Emerging injectable therapies for MS (summary--Lancet)
From The Lancet Neurology, October 14, 2013:

Emerging injectable therapies for multiple sclerosis

Dr Jiwon Oh MD a, Prof Peter A Calabresi MD a

Summary

Available treatment options for rela ...
  Topic: MS TREATMENTS: TYSABRI/NATALIZUMAB
agate

Replies: 349
Views: 199352

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Mon Oct 14, 2013 1:40 pm   Subject: 401 PML cases as of 9/3/13
The unofficial chefarztfrau Website is listing 401 cases of Tysabri-related PML as of 9/3/13.
  Topic: (Abst.) Regenerative approach to MS treatment
agate

Replies: 1
Views: 2195

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Sun Oct 13, 2013 10:51 pm   Subject: Promising new strategy to treat MS (Medical News Today)
More on this from Medical News Today, October 11, 2013:

Promising new strategy to treat multiple sclerosis

Scientists at The Scripps Research Institute (TSRI) have identified a set of compounds ...
  Topic: Study finds CCSVI theory not viable (Lancet)
agate

Replies: 2
Views: 2774

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Sat Oct 12, 2013 6:04 pm   Subject: (Abst.) Extracranial venous narrowing in PwMS...
From The Lancet, 0ctober 11, 2013:

Prevalence of extracranial venous narrowing on catheter venography in people with multiple sclerosis, their siblings, and unrelated healthy controls: a blinded, c ...
  Topic: (Abst.) Changing face of MS in UK 1990-2010
agate

Replies: 0
Views: 2935

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Fri Oct 11, 2013 6:09 pm   Subject: (Abst.) Changing face of MS in UK 1990-2010
From PubMed, October 11, 2013:

J Neurol Neurosurg Psychiatry. 2013 Nov;84(11):e2.

CHANGING FACE OF MULTIPLE SCLEROSIS IN THE UNITED KINGDOM 1990-2010. AN INCIDENCE AND PREVALENCE STUDY

Macke ...
  Topic: MS TREATMENTS: TYSABRI/NATALIZUMAB
agate

Replies: 349
Views: 199352

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Fri Oct 11, 2013 5:54 pm   Subject: (Abst.) MS & the Iranian revolution
From PubMed, October 11, 2013:



J Neurol Neurosurg Psychiatry. 2013 Nov;84(11):e2.

MULTIPLE SCLEROSIS AND THE IRANIAN REVOLUTION.

Pakpoor J, Ramagopalan S.

University of Oxford; Barts ...
  Topic: (Abst.) Regenerative approach to MS treatment
agate

Replies: 1
Views: 2195

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Fri Oct 11, 2013 5:34 pm   Subject: (Abst.) Regenerative approach to MS treatment
From PubMed, October 11, 2013:

Nature. 2013 Oct 9.

A regenerative approach to the treatment of multiple sclerosis

Deshmukh VA, Tardif V, Lyssiotis CA, Green CC, Kerman B, Kim HJ, Padmanabhan ...
  Topic: (ECTRIMS) Hidden impact of relapses on PwMS
agate

Replies: 0
Views: 2712

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Thu Oct 10, 2013 5:52 pm   Subject: (ECTRIMS) Hidden impact of relapses on PwMS
From Medical News Today, October 7, 2013:

New data highlight significant hidden impact of relapses on people with multiple sclerosis



The entire article can be seen [url=http://preview.medica ...
  Topic: Study finds CCSVI theory not viable (Lancet)
agate

Replies: 2
Views: 2774

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Wed Oct 09, 2013 10:45 pm   Subject: (ECTRIMS) BC CCSVI Registry--self-reporting
This study is still going on but the first two interviews have been done. The initial interview took place 15.5 months after the CCSVI procedure. The second interview was 6 months after the first.

...
  Topic: Study finds CCSVI theory not viable (Lancet)
agate

Replies: 2
Views: 2774

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Wed Oct 09, 2013 10:24 pm   Subject: Study finds CCSVI theory not viable (Lancet)
From MedPage Today, October 9, 2013:

Another Study Slams Vascular Theory of MS


By John Gever, Deputy Managing Editor, MedPage Today

Reviewed by F. Perry Wilson, MD, MSCE; Instructor of Medi ...
  Topic: Mouse studies of vitamin D-based MS treatment
agate

Replies: 0
Views: 2647

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Wed Oct 09, 2013 5:53 pm   Subject: Mouse studies of vitamin D-based MS treatment
From Medical News Today, September 30, 2013:

Mouse studies reveal promising vitamin D-based treatment for MS

...

In search of a better option for MS patients, a team of University of Wisconsi ...
  Topic: Warning about resveratrol supplements for MS
agate

Replies: 0
Views: 2783

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Tue Oct 08, 2013 11:00 pm   Subject: Warning about resveratrol supplements for MS
From Medical News Today, October 1, 2013:



Warning about resveratrol supplements for MS

People with multiple sclerosis (MS) are being warned against taking resveratrol supplements, after a ne ...
  Topic: (ECTRIMS) Beating MS (Charcot Lecture)
agate

Replies: 0
Views: 2887

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Sun Oct 06, 2013 4:48 pm   Subject: (ECTRIMS) Beating MS (Charcot Lecture)
Summary of the Charcot Lecture presented at the annual ECTRIMS conference in Copenhagen, October 2-5, 2013:

Closing Session

Saturday, October 05, 2013, 10:30 - 10:50

Charcot Lecture

Beatin ...
  Topic: MS TREATMENTS: TYSABRI - OTHER ISSUES
agate

Replies: 40
Views: 21249

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Sun Oct 06, 2013 4:35 pm   Subject: (ECTRIMS) Occurrence & management of PML & IRIS
Presented at the annual ECTRIMS conference in Copenhagen, October 2-5, 2013:

Management of risk in MS therapy

Friday, October 04, 2013, 11:05 - 11:25

Occurrence and management of PML and IRIS ...
  Topic: (ECTRIMS) Relationship between CCSVI & MS
agate

Replies: 0
Views: 2819

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Sun Oct 06, 2013 4:17 pm   Subject: (ECTRIMS) Relationship between CCSVI & MS
Presented at the annual ECTRIMS conference in Copenhagen, October 2-5, 2013:

Chronic cerebro-spinal venous insufficiency (CCVI)

Thursday, October 03, 2013, 15:45 - 17:00

Determining the relat ...
  Topic: MS TREATMENTS: TYSABRI-RELATED TOPICS
agate

Replies: 60
Views: 45306

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Sun Oct 06, 2013 4:01 pm   Subject: (ECTRIMS) Survival predictors in Tysabri-related PML
Presented at the annual ECTRIMS conference in Copenhagen, October 2-5, 2013:

MS and infections

Thursday, October 03, 2013, 15:45 - 17:00

Predictors of survival in natalizumab-associated progr ...
  Topic: (ECTRIMS) Relapse incidence in women & men (MSBase)
agate

Replies: 0
Views: 3156

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Sun Oct 06, 2013 3:54 pm   Subject: (ECTRIMS) Relapse incidence in women & men (MSBase)
Presented at the annual ECTRIMS conference in Copenhagen, October 2-5, 2013:

MS and gender

Thursday, October 03, 2013, 14:55 - 15:07

Relapse incidence in women and men throughout the course o ...
  Topic: (ECTRIMS) Neuropsychiatric disorders in MS
agate

Replies: 0
Views: 2741

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Sun Oct 06, 2013 3:38 pm   Subject: (ECTRIMS) Neuropsychiatric disorders in MS
Presented at the annual ECTRIMS conference in Copenhagen, October 2-5, 2013:

Neuropsychological challenges in MS

Thursday, October 03, 2013, 10:45 - 11:05

Neuropsychiatric disorders in multip ...
  Topic: MS TREATMENTS: AUBAGIO/TERIFLUNOMIDE
agate

Replies: 7
Views: 7068

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Sun Oct 06, 2013 3:33 pm   Subject: (ECTRIMS) Once-daily teriflunomide in CIS patients (TOPIC)
Presented at the annual ECTRIMS conference in Copenhagen, October 2-5, 2013:

Window of opportunity in MS treatment

Thursday, October 03, 2013, 12:01 - 12:13

TOPIC main outcomes: efficacy and ...
  Topic: ECTRIMS 2013
agate

Replies: 0
Views: 2511

PostForum: FORUM ANNOUNCEMENTS   Posted: Sun Oct 06, 2013 9:14 am   Subject: ECTRIMS 2013
The 29th Congress of the European Committee for Research and Treatment in Multiple Sclerosis (ECTRIMS) and the 18th Annual Conference of Rehabilitation in MS (RIMS) has just taken place in Copenhagen ...
  Topic: (ECTRIMS) Alcohol as modifiable factor & MS risk
agate

Replies: 0
Views: 2807

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Sat Oct 05, 2013 7:06 pm   Subject: (ECTRIMS) Alcohol as modifiable factor & MS risk
Presented at the annual ECTRIMS conference in Copenhagen, October 2-5, 2013:

Epidemiology

Thursday, October 03, 2013, 15:45 - 17:00

Alcohol as a modifiable lifestyle factor affecting multiple ...
  Topic: (ECTRIMS)Neighborhood socioeconomic status & MS...
agate

Replies: 0
Views: 2664

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Sat Oct 05, 2013 6:46 pm   Subject: (ECTRIMS)Neighborhood socioeconomic status & MS...
Presented at the annual ECTRIMS conference in Copenhagen, October 2-5, 2013:

Epidemiology

Thursday, October 03, 2013, 15:45 - 17:00

Neighbourhood socioeconomic status and multiple sclerosis: ...
  Topic: (ECTRIMS) Pilates-based core stability training in MS...
agate

Replies: 0
Views: 2660

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Sat Oct 05, 2013 6:31 pm   Subject: (ECTRIMS) Pilates-based core stability training in MS...
Presented at the annual ECTRIMS conference in Copenhagen, October 2-5, 2013:


New insights on exercise therapy in MS

Thursday, October 03, 2013, 15:15 - 15:27

The effects of Pilates-based co ...
  Topic: (ECTRIMS) Smoking & MS susceptibility
agate

Replies: 0
Views: 2857

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Sat Oct 05, 2013 6:15 pm   Subject: (ECTRIMS) Smoking & MS susceptibility
Presented at the annual ECTRIMS conference in Copenhagen, October 2-5, 2013:

Triggers in MS

Thursday, October 03, 2013, 15:07 - 15:19

Smoking and multiple sclerosis susceptibility

A.K. Hed ...
  Topic: (Lancet abst.) Emerging injectable therapies for MS
agate

Replies: 0
Views: 2522

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Sat Oct 05, 2013 4:03 pm   Subject: (Lancet abst.) Emerging injectable therapies for MS
From PubMed, October 5, 2013:

Lancet Neurol. 2013 Sep 30. pii: S1474-4422(13)70192-3.

Emerging injectable therapies for multiple sclerosis

Oh J, Calabresi PA.

Department of Neurology, Joh ...
  Topic: Shingles vaccine (MSAA Motivator)
agate

Replies: 0
Views: 2754

PostForum: THE PRACTICAL SIDE OF BEING MULTIPLY SCLEROSED   Posted: Fri Oct 04, 2013 11:04 pm   Subject: Shingles vaccine (MSAA Motivator)
From the MSAA Motivator, Summer/Fall 2013:


Shingles Overview and Vaccine Safety

Live, attenuated vaccines may be an issue for individuals with MS

Compiled by Susan Wells Courtney
Reviewed ...
  Topic: MS patients & the Affordable Care Act (ACA)
agate

Replies: 1
Views: 2347

PostForum: THE PRACTICAL SIDE OF BEING MULTIPLY SCLEROSED   Posted: Thu Oct 03, 2013 6:00 pm   Subject: MS patients & the Affordable Care Act (ACA)
From the eMS News (Rocky Mountain MS Center), October 1, 2013:

Affordable Care Act: 10 Things to Know

What Are MS Patients Shopping for in the Health Insurance Marketplace?
Jill K Leslie, Publ ...
  Topic: Black, Hispanic children get less attention in ERs
agate

Replies: 0
Views: 2193

PostForum: GENERAL   Posted: Wed Oct 02, 2013 8:12 pm   Subject: Black, Hispanic children get less attention in ERs
From the New York Times, October 1, 2013:

Unequal Pain Relief in the Emergency Room

By NICHOLAS BAKALAR


Black and Hispanic children who go to an emergency room with stomach pain are less li ...
  Topic: NMSS teleconference (West region) on ACA
agate

Replies: 0
Views: 2041

PostForum: MS WEBCASTS, TELECONFERENCES, SEMINARS   Posted: Tue Oct 01, 2013 5:21 pm   Subject: NMSS teleconference (West region) on ACA
On October 3 there will be an MS Society teleconference on the Affordable Care Act:

Affordable Care Act: Key Provisions for People with MS

Thursday, October 3rd, 2013
6:30-7:30 p.m. PT / 7:30- ...
  Topic: Time to put more women in Congress
agate

Replies: 0
Views: 2098

PostForum: FIGHT CLUB - BRING IT ON!   Posted: Mon Sep 30, 2013 4:16 pm   Subject: Time to put more women in Congress
If one's livelihood depends on one's monthly Social Security check, as mine does, one does well to keep a close eye on what the US government is doing just now.

It hasn't been pretty. There is a re ...
  Topic: MS TREATMENTS: TYSABRI-RELATED TOPICS
agate

Replies: 60
Views: 45306

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Sun Sep 29, 2013 6:27 pm   Subject: (Abst.) JCV granule cell neuronopathy...
From PubMed via NTK Institute, September 25, 2013:

Ann Neurol. 2013 Jul 19.

JCV granule cell neuronopathy and GCN-IRIS under natalizumab treatment

Schippling S, Kempf C, Büchele F, Jelcic I, ...
  Topic: What not to eat
agate

Replies: 1
Views: 2284

PostForum: GENERAL   Posted: Sat Sep 28, 2013 9:13 am   Subject: What not to eat
And from the same source, September 28, 2013, there's the Red Velvet Cake enticing customers at California Pizza Kitchen:

Code Red Cake

California Pizza Kitchen’s Red Velvet Cake is loaded with ...
  Topic: What not to eat
agate

Replies: 1
Views: 2284

PostForum: GENERAL   Posted: Sat Sep 28, 2013 9:05 am   Subject: What not to eat
Maybe it's way past time to focus on just what many Americans are eating these days. NutritionAction.com, a division of Center for Science in the Public Interest, has been calling attention to some of ...
  Topic: Vegetarianism & heart health
agate

Replies: 0
Views: 1815

PostForum: GENERAL   Posted: Sat Sep 28, 2013 8:12 am   Subject: Vegetarianism & heart health
From the Berkeley Wellness Letter, September 28, 2013:



VEGETARIANISM AND HEART HEALTH

Vegetarians, on average, weigh less and have lower blood cholesterol and blood pressure than meat eaters ...
  Topic: MSAA live Webinar on Medicare changes
agate

Replies: 1
Views: 2875

PostForum: MS WEBCASTS, TELECONFERENCES, SEMINARS   Posted: Fri Sep 27, 2013 8:54 pm   Subject: MSAA live Webinar on Medicare changes
The MSAA is going to have a live Webinar on Medicare changes under the Affordable Care Act (ACA). The Webinar will be Tuesday, October 14, at 9 PM EDT.

The 1-hour session, entitled "Understanding M ...
  Topic: Goodbye to all that: a short history of CCSVI
agate

Replies: 0
Views: 2203

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Wed Sep 25, 2013 11:05 pm   Subject: Goodbye to all that: a short history of CCSVI
This editorial refers to two articles in the same issue of Multiple Sclerosis Journal. More information from these articles appear in separate threads:

Goodbye to all that: a short history of CCSVI ...
  Topic: Controlling MS muscle spasms
agate

Replies: 0
Views: 1994

PostForum: THE PRACTICAL SIDE OF BEING MULTIPLY SCLEROSED   Posted: Mon Sep 23, 2013 12:47 pm   Subject: Controlling MS muscle spasms
From WebMD (reviewed by Neil Lava, MD, June 26, 2013):



Controlling muscle spasms from multiple sclerosis


Many people with multiple sclerosis experience spasticity, or muscle stiffness and ...
  Topic: FLU SHOTS
agate

Replies: 0
Views: 1910

PostForum: THE PRACTICAL SIDE OF BEING MULTIPLY SCLEROSED   Posted: Sun Sep 22, 2013 6:54 pm   Subject: FLU SHOTS
From Physician's First Watch, September 20, 2013:

Flu Vaccination...

By Cara Adler


The CDC's Advisory Committee on Immunization Practices has published its recommendations for influenza ...
  Topic: (Abst.) MS incidence & prevalence in UK 1990-2010...
agate

Replies: 0
Views: 1918

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Sat Sep 21, 2013 12:44 pm   Subject: (Abst.) MS incidence & prevalence in UK 1990-2010...
From PubMed, September 21, 2013:

J Neurol Neurosurg Psychiatry. 2013 Sep 19.

Incidence and prevalence of multiple sclerosis in the UK 1990-2010: a descriptive study in the General Practice Rese ...
  Topic: Remyelinating antibody rHIgM22 in Phase 1 trial
agate

Replies: 0
Views: 2035

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Fri Sep 20, 2013 6:26 pm   Subject: Remyelinating antibody rHIgM22 in Phase 1 trial
From Healthline News, September 18, 2013:


Trial of New Drug Therapy Seeks to Repair Nerves Damaged by MS

Written by Jeri Burtchell
If successful, a new remyelinating antibody called rHIgM22 ...
  Topic: Minn. Wild goalie treated for MS
agate

Replies: 2
Views: 2242

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Thu Sep 19, 2013 9:11 pm   Subject: Minn. Wild goalie treated for MS
Update: He's set up a charity to help people with MS.

http://www.hardingshope.org/

There's a New York Times (9/19/13) story about it [url=http://www.nytimes.com/2013/09/20/sports/hockey/minnesot ...
  Topic: THE BAD SEED (1985)
agate

Replies: 0
Views: 2158

PostForum: MOVIES   Posted: Thu Sep 19, 2013 6:38 pm   Subject: THE BAD SEED (1985)
I read the book and saw the 1956 movie many years ago, probably in the early 1960s, and found that I remembered it surprisingly well this time around, when I watched this 1985 made-for-TV movie. Unfor ...
  Topic: MS may originate in the gray matter
agate

Replies: 3
Views: 2954

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Wed Sep 18, 2013 5:42 pm   Subject: MS Discovery Forum article
More on this from MS Discovery Forum, September 18, 2013:

First-Attack Multiple Sclerosis Targets Gray Matter

A new technique has identified changes in gray matter-related proteins in CSF that ...
  Topic: MS may originate in the gray matter
agate

Replies: 3
Views: 2954

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Tue Sep 17, 2013 1:46 pm   Subject: MS may originate in the gray matter
Abstract from PubMed, September 17, 2013:

PLoS One. 2013 Sep 10;8(9):e66117. doi: 10.1371/journal.pone.0066117.

Gray matter is targeted in first-attack multiple sclerosis

Schutzer SE, Angel T ...
  Topic: MS may originate in the gray matter
agate

Replies: 3
Views: 2954

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Tue Sep 17, 2013 1:35 pm   Subject: MS may originate in the gray matter
Here is a link to the entire PLOS One article:

http://www.plosone.org/article/info%3Adoi%2F10.1371%2Fjournal.pone.0066117
  Topic: SUMMIT study of MS progression under way
agate

Replies: 0
Views: 2294

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Mon Sep 16, 2013 6:33 pm   Subject: SUMMIT study of MS progression under way
From Momentum, Fall 2013:

New heights for progressive MS research


The Serial Unified Multicenter MS InvesTigation (SUMMIT) study is generating excitement in its quest to unravel the mystery of ...
  Topic: MS may originate in the gray matter
agate

Replies: 3
Views: 2954

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Sat Sep 14, 2013 5:25 pm   Subject: MS may originate in the gray matter
From Medical News Today, September 13, 2013:

Multiple sclerosis appears to originate in different part of brain than long believed


The search for the cause of multiple sclerosis, a debilitat ...
  Topic: Adaptive clothing resources
agate

Replies: 0
Views: 2268

PostForum: THE PRACTICAL SIDE OF BEING MULTIPLY SCLEROSED   Posted: Sat Sep 14, 2013 4:13 pm   Subject: Adaptive clothing resources
Here is a list of links to sources of adaptive clothing and accessories. All except WheelieChix-Chic offer both men's and women's clothes. Some will send a catalog on request. Most include shoes and ...
  Topic: (Abst.) Clinical importance of steps taken per day in PwMS
agate

Replies: 0
Views: 5513

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Fri Sep 13, 2013 6:30 pm   Subject: (Abst.) Clinical importance of steps taken per day in PwMS
I've tried pedometers a couple of times--different pedometers at different times--and used each of them for about a week. I always turned out to be taking about 500 steps per day. A normal person walk ...
  Topic: MS TREATMENTS: TYSABRI-RELATED TOPICS
agate

Replies: 60
Views: 45306

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Thu Sep 12, 2013 4:40 pm   Subject: (Abst.) Risk factors ... PML & Tysabri
This abstract gives a succinct summary of the current situation with respect to the risk of PML in MS patients taking Tysabri.

From PubMed via NTK Institute, September 12, 2013:

Neurology. 2013 ...
  Topic: About yogurt
agate

Replies: 0
Views: 1852

PostForum: GENERAL   Posted: Wed Sep 11, 2013 6:38 pm   Subject: About yogurt
The yogurt scene is a bit complicated. This article in Nutrition Action Daily Tips, 9/2-9/7/13, explains about yogurt:


Yogurt for Newbies

Here’s the basic information you need to know about yo ...
  Topic: Biogen, Elan being sued over Tysabri-related PML
agate

Replies: 0
Views: 1706

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Tue Sep 10, 2013 4:49 pm   Subject: Biogen, Elan being sued over Tysabri-related PML
From the Boston Globe, September 10, 2013:

Biogen Idec, Elan facing suits over MS drug side effects

Allegedly failed to warn of risks

By Robert Weisman | GLOBE STAFF SEPTEMBER 10, 2013
...
  Topic: Harder for the chronically ill to put food on the table
agate

Replies: 0
Views: 1862

PostForum: THE PRACTICAL SIDE OF BEING MULTIPLY SCLEROSED   Posted: Mon Sep 09, 2013 6:36 pm   Subject: Harder for the chronically ill to put food on the table
The study discussed here was done in Canada but similar results would probably be found in the US--and other countries too maybe.

The US is set up for the convenience of people with vehicles. I've ...
  Topic: MS TREATMENTS: COPAXONE
agate

Replies: 63
Views: 55432

PostForum: MS - RESEARCH, ARTICLES, ABSTRACTS, DISCUSSION   Posted: Sun Sep 08, 2013 11:17 pm   Subject: Copaxone 3 times weekly may or may not happen
From www.bloomberg.com, July 29, 2013:

Teva Plan to Safeguard $4 Billion Drug Endangered by Ruling

By David Wainer

Teva Pharmaceutical Industries Ltd. (TEVA)’s plan to switch patients to a l ...
  Topic: Emergency preparedness
agate

Replies: 0
Views: 1813

PostForum: THE PRACTICAL SIDE OF BEING MULTIPLY SCLEROSED   Posted: Sun Sep 08, 2013 7:03 pm   Subject: Emergency preparedness
This list comes from the MS Foundation:

Emergency Planning - Are YOU Ready?

A power outage is an inconvenience for everyone, but for people with disabilities it can become a life-threatening sit ...
 
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