Search found 125 matches

Actually I have a problem with phones in general.
Not a problem with using them, a problem with how they are used!

I hate telephones. Many people use them as a form of entertainment instead of com ...

Thanks Agate!
Right back atcha!

We dont have any religious plates here. I just checked.
We do have a "Tobacco Heritage" plate
LOL - sort of fits what I was telling you about our community on the other smoking thread.

I do know ...

Thanks!
I hope it works also, for all our benifit!

You have run the road of treatment. How frustrating that must be.
Good thing LDN does help your sx's in some ways.

Section 8 is closed here. I forgot why, if I ever knew.
He is applying for a voucher. Also, there are about 5 large complexes here for elderly/disabled that will pre-approve you for section 8 and get ...

Sort of going through this now with my brother. He had a stroke (damn, cant even remember how long ago...2 years?)...Anyway, left him disabled. He has very limited movement on his entire right side an ...

Hi Vanessa!

I know a lot of people on LDN. I tried it once but quit to go into the Tovaxin trial. I never checked into if it was allowed, I just didn't want to take any chance on not getting into t ...

I am a smoker. Came from a long line of smokers living in a pro-smoking community (until recently). I respect non-smokers to the best of my ability.

Apartment living is different. You have all kind ...

Hi Agate!

Best part of April and May around here is I get to raise the windows. No A/C, just fresh air! I love the cool nights. Luckily pollen bothers nobody around the house.

I have been thinki ...

Thanks Ewizabeth and Agate! This leg of the trial is unblinded and I WILL be getting the good stuff.
I tell ya, going into the trial was exciting and all, but there are a lot of things a person goes ...

Well I have been away for quite some time. Thanks Agate for the reminder! Sort of took a break from most boards. Just keeping up with Tovaxin news and chit chat.

I had finished the phase 2b part of ...

Hi strangers!

Been away, busy with this, that and the other. I bought a new computer at home and work and was just adding all my saved links to favorites, and found you guys and gals again.

Stil ...

Good Luck on the Tysabri!

As you might know I am a cat person. I have 3 1/2.
I adopted my great aunts cat when she died but he likes it at the neighbors more than home.
I have a dog too but cats ...

April was fair to me. Much better than March!

The begining of April I was a little depressed because I was sure, in my mind, that I was on the Tovaxin placebo. I had felt a little better but nothin ...

Thats what I thought about. Maybe it was one of those lesions in development or that the MRI just didnt pick up.
I mean what else can cause it if not a lesion somewhere?

Hey heres a funny for you. ...

I am trying to soak this in but its not working.

I have upper limb impairment. I also have lots of upper limb pain. After all this upper limb crap started over a year ago I just knew I had a new le ...

Hiya Cindy!
Welcome!

Welcome Deb!

Hi Ewizabeth!

I did start the neurntin again. Not the baclofen. It's been long enough to know if it helps. It does, not as much as I hoped but any amount is plus.

I was starting to feel better, ...

That was sort of my thinking. I am rarely outside anymore. Once a week in a tanbed for 5-10 minutes doesn't sound all that bad. But what do I know?

The worst is in the summer when I wear shorts and ...

Agate you are the bomb. Thanks.
I am not having much luck searching.

So probably if a person needs D the best bet would be supplements, right?
Makes sense. I surely wouldn't want to bring on more ...

Seems my searching skills are off. I didn't find any worthwhile articles. Agate the link isn't working for me. Says I have to be a member? Can I just sign up?

I ws thinking if its true to visit a t ...

I think I will do a search because I wondered about vit. D and sun lamps. Paticuarly tannign beds. Someoen siad once that you can get D from them. I wonder if there is any eveidence to back that up? A ...

Wow Agate! What a treat. New carpet is fabulous!
I am hoping next year to have my hardwoods redone. they are really worn. I dread moving everything out though.

I have to say last month wasn't all ...

You know I cant find what I thought I was looking for and now I can't even remember exactly what I was trying to say to actually look. lol

I remember getting a call in a good amount of time after I ...

Just curious on what they said. That you had the MRTC but not enough to make the vaccine or ??? - if you don't mind sharing those details.

I remember an article I read when deciding on this path. ...

E,

Sorry tovaxin didn't work out for you. I know you are bummed.
I really hope your next move works out well for you.

That's a good question! I seem to remember hearing that I will at the end. But I couldn't swear by it. regardless I will be doing the rollover where I know I will get the real stuff.

I think eral ...

Sorry I haven't been around lately.
I shut off my internet to save money so I am only on at work now.
(hopefully temp.)

Still inthe trial and having my 3rd treatment this month. ( I am keeping up ...

Dang! I am sorry you didn't have the MRTC this time. I will hope you have them next test. Also hope you get the record thing straightened out.

I almost think that sometimes I can make myself more ill by dwelling on issues. Like you said I don't think it's in my mind but it seems to make things worse when I concentrate on them too much. So wh ...

Agate,

They are being very careful. Plus there is a strict protcol they have to follow. No one has said specifically what I am expected to notice, if anything. The only thing they have stressed is ...

I updated my blog and will update it more as things change, if they do.

First treatment went okay, nothing spectacular to report, yet!

Haven't checked in for awhile.
Updated my blog. I get the shot on the 30th of this month.
I hope it's the real thing. I have been trying to convince myself I will so maybe I could get the "placebo e ...

Somehow I accidentally posted 2 of the same links.
I fixed the second link.
I have no idea why I didn't check them like I normally do.

scratch

Thanks for pointing that out Agate!

I read this story awhile back.
There is a better article about it at 60 minutes web site.

http://www.cbsnews.com/stories/2006/01/25/60minutes/main1238202.shtml

The last paragraph is the one tha ...

I'm trying to refrain from my constant ranting about that stupid bastard

http://members.aol.com/sweetyhide2/smileys/ohno2.gif
Oops! Sorry! I just ran across it and knew you would be the one to sha ...

Here is some "mind blowing" Bush quotes for you Mr. Soul....

http://throwawayyourtv.com/2006/11/three-mind-blowing-bush-quotes.html

I try to pop in here everyday to see whats happening. I am known for not posting alot. I am a reader mostly.
I too enjoy the articles Agate posts. It's like a one stop shop!

I am hanging in. Been ...

Very interesting.

I think the discussion came up, in other places, about a T-cell test to likely be part of a MS dx. I would imagine that might happen in the near future.
It's already difficult in ...

LOL Happy Birthday

I go in Thursday for the blood draw to make the vaccine.
I am really getting excited now.
I updated my blog but thats basically what it says.

Hi Cricket,

The only thing similar I have had is some sort of vertigo.
When I lay down it feels like I am swinging in a hammock.

To me, it sounds like some sort of spasm you are describing. Is ...

I voted for JenisonBands. I never really change from whatever the defaults are at message boards. I checked them out and all are fine with me, but if i HAD to pick, JenisonBands. Completely white back ...

Thanks Agate, Matt and Ewizabeth.

I had started a blog about it so I guess I will just do updates and such there instead of shouting all over the net.
I will put the link in my signature or profil ...

Just heard from the coordinator of the trial and she said the T-cell test is complete and I am in.

So I go wed for a MRI and I wait for Life Line to call about giving that mass amount of blood to m ...

James I pray you only have MS. This is some scary stuff!

Hi Agate,

I remember the long talk my Dr had with me then I wanted to stop Copaxone becauce I was feeling so crappy. The long spill about how it wont make you feel better.

Actually I thought ma ...

And more than 75 percent of the patients who had used Tysabri prior to its 2005 suspension have decided not to use it since its reintroduction, the survey showed.

Maybe that article should read "P ...

Ewizabeth,
I see we are posting behind each other all over the place! Ha!

My coordinator told me that if I don't produce the needed T-cells this round I can wait 30 days and try again.

BTW~I ...

Hi Ewizabeth,
I am trying to get into the Tovaxin trial too, in NC. I was following it last year when Tim was in it.

I have about another week to get the results to see if I produce the T-cells.
...

I may have revealed a lot on the book but there is still a lot there to read. Like how he was railroaded to begin with. really insane.

I have to admit it did sway my opinion of the death penalty a ...

I have to admit I haven't read much in the past couple of years. There are times when my comprehension level is way down and I have to read sentences over and over again just for them to sink in. So I ...

I got 8 out of 10 too.

I love my heating pad. I don't have sensitivity to heat unless it's the dead of summer but I do have sensitivity to cold. Soon as the milder weather sets in the pad comes out and stays on most of the ...

I was very excited to go Tuesday for my initial screening for the Tovaxin trial. Everything went pretty smooth other than being really nervous about giving so much blood. Now I have to wait approximat ...

hmmm...I cant seem to locate you by the name agate2.

You know I was looking through my tests (picked up all my records for the Tovaxin trial) and saw where my AST & ALT levels were high. I was wondering why since this was performed before I started ...

I agree Cherie, things change all the time and you never know what a new pres. might come up with.
Hopefully all this will end sooner.

As for "contributing" our kids, we all know we can't make dec ...

Just my thoughts (no matter how skewed..lol)

If MJ is next to legal in Canada and there isn't a real problem there do you think that MJ is getting a bad rap here in the states?

Trust me, the pr ...

I am hanging inthere. I had a family emergency pop up so it is keeping me busy.

I have stopped my Copaxone and I am crossing my fingers to get into the Tovaxin study phase IIb that just started up ...

Links on a post to anything except another mental health community are okay, as long as it's your personal site, photos, a research article, a helpful tip, etc.

This is your personal site.
I doub ...

Luckily I have a pretty good dr. He takes my No's easily.
The problem I have is not retaining any info. I always thought I had a bad memory. Now I know its more than that. On top of that I dont comm ...

I havent had degenerative disk disease checked lately. Back in 2004 I did. Everything was fine.

I had run across something once. Thoratic Outlet Syndrome. It fits my sx's to a tee. They had a spot ...

depending on which dictionary definition Mr Soul intended to use.

Well we all know Mr Soul's intent when he used it.

I was just trying to stess that sometimes, here in the south, we use the ter ...

sometimes i sit the board in my lap. helps some.
i just really need to limit my typing for awhile. its just too hard to only read.

i have given up trying to find out if it is ms related or not. s ...

Everytime I SEE that antiquated remnant of 150 years ago, it pisses me off. You want me to geographically locate rednecks for you, I can't and won't do that. I WILL say that most of 'em car ...

i am still having terrible troubles with my arms and hands. stiffness has worked its way up to my shoulders and neck. very hard to sit in front of the computer for very long with my arms up to the key ...

The sooner these rednecks (and southerners in general) realize it, the sooner we can ALL collectively, join the 21st century. Until then, we can continue to have these idiotic debates. Southerne ...

Isn't North Carolina still flying a rebel flag on their capitol ? That oughta qualify for redneck status right there. THAT'S criminal. It's history, fercrissakes. That's implicating all resident ...

My jab was NOT directed at "southerners", but, REDNECKS. I differentiate between the two. As I've said many times there ARE intelligent southerners...those rednecks touting their bibles and re ...

Isn't there a lot of evidence--and isn't it pretty much accepted now--that a person's sexual orientation is "set" at birth? If it's something you're born with, then you can't help being gay, as I unde ...

Great link Agate!
Thanks!

The only downside to having an extra tiny fridge, to me, is it will have to be cleaned from time to time. Cleaning out a fridge is my all time worst chore!

since i only plan to use it for bottled w ...

Only changes I can think of is my bed is softer. I cant take a firm mattress anymore. I feel like I have been attacked with a baseball bat.
I now have a fluffy featherbed. The softness works well.
...

I just need to get laid, I think. geek

Don't we all!

What in the hell is happening here?
http://members.aol.com/sweetyhide2/smileys/a/didimiss.gif

I think someone needs to put on some disco to change the mood!http://members.aol.com/sweetyhide2/smile ...

Are you on Copaxone by any chance? I get this same sort of thing too but mines usually more precipitated by heat.

I am on copaxone.
I am trying to remember if i had it before c, but i can't rec ...

Sometimes i get these red splotches.
Not really a rash just red, hot and itchy. Lasts about 5-25 minutes.

Usually it's when something other than clothes touches my skin.
When i go to the store an ...

Sweety is the nickname my husband calls me.

I was trying to come up with a nickname for a new email address because my other one was getting so much spam. With AOL all you have to do is visit a cha ...

Pajamas all the time while at home.
I have a larger selection of PJ's than I do regular clothes.

When I have to go out I wear loose comfortable stuff and flip flops. Shoes hurt my feet.
In the wi ...

Now this is way cool!
http://members.aol.com/sweetyhide2/smileys/a/thankyou.gif

I dont cook as much and as well as I did years ago.
We eat a lot of microwave stuff, sndwiches and things that are easy.

On the weekends I do cook some.
Mostly mexican and italian stuff because i ...

I don't have any useful ssuggestions, but I can share my difficulties.

My car broke down and I am currently driving my sons car. (Can't remember the name) real sporty 2 door and VERY low to the gro ...

the benefits they derived made the risks acceptable.

Thats what I have been thinking all along.

Oh...for...the...love...of...God!

Give it a rest, Cherie. Please.

BTW, if I did leave this board, just so you know, it would be because of you and the others Joy cited. You make this a miserab ...

Just saw this.
Not sure there is any real reason to reply since she is gone now. But I can think of 2 reasons.

1.
to her friends:
Let her know that I do wish her well and i am sorry she left.
...

You think Montel is bad, try watching Oprah. Mainly the last 20 minutes of the show. She will come back on and say a sentence or two and then back to commercial!

I watched it and although I was disappointed I was full aware that it was mainly just people stories.
Overall, it acheieved what was intended.

Although I enjoy these types of shows, generally, I w ...

And zenna, great point about tailoring your language to it's audience, and using certain words to "flavor" one's point.

Like "ya'll"
????

Becareful of that double standard.
http://members.aol. ...

mmcc,

here is an article of one dr's theory.
http://www.bostoncure.org:8080/article.pl?sid=05/01/27/1748256

just something to peruse while you wait for the more experienced people to answer.

And zenna, great point about tailoring your language to it's audience, and using certain words to "flavor" one's point.

Like "ya'll"
????

Becareful of that double standard.
http://members.aol. ...

...
If more attention is brought to the drug then maybe I can get a friggin' script!

Could you post the city you are from along with a request for the names of doctors who prescribe LDN here and o ...

I agree with what Zenna and Cherie said about LDN too.
But on a more selfish note:
If more attention is brought to the drug then maybe I can get a friggin' script!

Disclamier: This is how I feel.
I make no claims and can back up no information (other than the copaxone study)because the little woman that lives in my head says this is true:

In all honesty I am ...

Joy, I still cant see where she "bashed" you.
Sorry.

I think that maybe you are too wrapped up in what she says. Chill out.

This is why people who aren't doctors should not try too hard to infl ...

I really feel for all those having to deal with heat.
I have the oppisite problem.
My boss keeps the air so high I wear a sweater!
It was over 100 degress this week and I was inside a meat locker w ...

Please stop! Dont turn this into a "let's all jump on Cherie" thread!

I have been on Copaxone since 2004. (sorry cant remember exactly what month right now)

I came to the internet to learn all i ...

You can check out any micro myths over at www.snopes.com, just use the search there.

I also saw a episode of Myth Busters (on the discovery channel?) about microwaves cooking from the inside out. A ...

I work part time but only because it is a family business and they needed the help. It's not enough money to really even consider as part of my income. My husband make the bucks around here so that's ...